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Author Topic: Story: Leigh and Joel  (Read 15872 times)

Offline napacaster

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Re: Story: Leigh and Joel
« Reply #90 on: 12. September 2024, 05:38:01 AM »
Ch. 188 - Lori and Blakely
 
 
Last night, Lori and Scott had Joel and me over for dinner. It's remarkable how well Lori is doing with her KAFO and prosthetic leg; she gets around quite easily despite her cumbersome halo traction brace. She is also doing well with her prosthetic hand; it's almost like it's her real hand at this point. For the next few months, she will be wearing a very restrictive cast to over correct her scoliosis and kyphosis, two issues she never knew she had until they were worsened by her accident. Ben will apply her cast at the hospital he works at, and Lori will remain there for a few days for observation. Jackie graciously offered to let Scott stay with her and Ben so he wouldn't have to be alone in a hotel.
 
 
Lori was very apprehensive and feared the pain and discomfort, both physically and emotionally, that her casting would likely involve. The idea of giving up her hard-earned mobility, even temporarily, is very difficult for her to cope with. I think this is the most emotional I have ever seen Lori, and while we were taking a walk after dinner, she completely broke down. I hope things go well for her and that her discomfort is minimal.
 
 
We have all been waiting for news on how things went for Lori today, and this evening, several of us got a group text from Scott. It simply stated:
 
 
"Lori is now in her corrective cast, and she is in extreme discomfort. The cast holds her body in a very contorted position, and it pains me to see her like this. At least her halo is being utilized with her cast so her head is not casted as originally planned. Ben said it will get easier for her with time, but she will never be comfortable in her cast. The good news is that she will possibly only need one cast instead of two, which will make life a bit easier for Lori; the casting process was grueling. Once out of her cast, she will begin wearing her spinal brace and doing PT to rebuild strength and flexibility. This is quite the ordeal for both of us, and we are thankful to have friends to see us through it. We love you all, Scotty. "
 
 
****
 
 
Lori ended up spending two nights in the hospital. The extreme angles of her cast caused her to have some difficulty breathing, but she's finally coming home. Once she was home, we had a short video chat. Lori seemed to be depressed and lonely, but I did get her to smile a time or two. I couldn't see too much of her cast the way she held the phone, but she still had the halo ring on her head, holding it tilted back and to the right. She looked extremely uncomfortable; however, she invited me to stop by and visit tomorrow.
 
 
****
 
 
I'm off to visit Lori this morning. It's a nice day, so I decided to use my power chair to make the short trip to her home instead of driving. I wore my new bright red HKAFO-Milwaukee brace along with my red glasses, facebows, and headgear. I thought the bright color might cheer Lori up. 
 
 
When I arrived, I left my wheelchair on the porch, crutched to the door, and rang the doorbell. Scotty answered, saw me in, and hollered towards the back of the house, "Hey Lori, Leigh is here to visit you." He then led me to the bedroom, where Lori will be spending the next two months.
 
 
I was shocked when I saw Lori lying in her special orthopedic hospital bed with her body encased in white fiberglass. The bed is one of those where someone is strapped in and the bed rotates to prevent pressure sores. Her casted body was strapped to the bed, but her arms and right leg were free since she was lying on her back. 
 
 
Lori's cast is huge and looks to be the most uncomfortable cast I have ever seen, and I have seen and worn many casts. The cast covered the stump of her left leg and continued up her body, ending at her shoulders. The part of the cast that went over her shoulders did not touch them; there was about a two-inch gap. The cast held Lori's spine arched back, and there was a severe bend at her hips, pushing her upper body to the left. Her halo ring was attached to the cast, and her head was positioned leaning to the right and tilted back. She was wearing her orthodontic headgear attached to the outriggers on her halo ring. Lori looked miserable with her body forced into this contorted position, yet she smiled wide, showing her bands, when I came within view.
 
 
"Oh, it's good to see you, Leigh!" Lori happily said. "This has been so difficult for me, and the pain is pretty bad, too."
 
 
"I can't imagine what it would be like to wear a cast like yours, Lori. You know I love casts, but I don't think I would love that one." I smiled at Lori, and she laughed.
 
 
"I bet Judy or Emme would love to be in my place, wouldn't they?" Lori was right; those girls would probably enjoy a cast like this despite the discomfort.
 
 
"Yes, I think they would." I said, and we both laughed.
 
 
Lori and I talked for a while while Scotty ran to do some errands. Lori explained to me that she will be in this cast for a month, then X-rays will be taken. Then, depending on how things look, she will get a new cast or remain in this one for another month. Ben thinks that only one cast will be necessary, but only time will tell.
 
 
Lori said the hardest part for her so far is giving up her long-fought for mobility. The idea of being bedridden for two months is really difficult for her to cope with, even more difficult than the constant pain and discomfort she is in. Once she is out of her casts, Lori can finally get into the special brace that Billy is making for her, and can begin physical therapy to rebuild her strength. Eventually, Lori might only need to wear a Boston brace during the day and something a little more supportive at home and to sleep in.
 
 
We had a wonderful chat, and by the time Scotty returned home, Lori was rather tired. As we were saying our goodbyes, I reminded Lori that Blakely and Chris are arriving tomorrow and will be spending two weeks here. Blakely's parents are traveling again, and she is getting her external distraction device for her protraction treatment. Lori said that by the weekend, she hoped to feel better and would love for all of us to come visit. Lori loves being around Blakely, Emme, and Judy; she finds their youthful energy invigorating.
 
 
****
 
 
Blakely and Chris arrived early this morning, and Chris was sporting a new hair style. A high and tight looked great on him; he's quite a handsome young man. They will be staying in Billy and Collene's guest house for two weeks while Blake's parents take another vacation. It seems like Dave and Donna are always traveling, either for pleasure or for Dave's work. Once the kids got settled in, they went to visit Blake's parents and help them get ready for their trip; we are all going to take them to the airport this afternoon.
 
 
At about one, Judy, who now works from home most days, and I got in our small bus and headed to the Santos's home for a late lunch. After we enjoyed lunch, Chris got the suitcases loaded into the bus, and we began our journey to the airport. Recently, we have been spending at least one night a week visiting with Donna and Dave, and we have become quite good friends. I don't know what Blakely has told them about us, but the topic of our braces has never come up until now. 
 
 
"So Judy, Blake has told me all about wearing her various braces. What's it like for you to wear yours?" Donna inquires.
 
 
"Oh, after a while, they just became part of you. I really don't think about them anymore. Once you get used to them, they are very comfortable." Judy gives factual answers.
 
 
"How about you, Leigh?" Donna looks toward me.
 
 
"I feel the same, Donna. In fact, I enjoy wearing them, and I think Judy enjoys her braces, too." I reply.
 
 
"I think I understand. Blake has told me a lot about all her new friends—maybe too much." Donna shyly admits, and Blake looks quite nervous. "The reason I ask is that my back has been giving me trouble for years, and I think I need to get it checked out."
 
 
"Well, get yourself checked out, Donna. You don't want to have back troubles as you get older. We are all here for you, like we were for Blake." I reassure Donna, and Dave holds her hand.
 
 
"Thank you, Leigh." A warm smile comes to Donna's face.
 
 
When we arrive at the airport, Chris pulls into the bus parking area, and soon a shuttle stops to pick us up. Once inside the terminal, Dave and Donna get their baggage checked, and we are soon saying our goodbyes. Once they board their plane, Blake wants to stop off at the lounge for a drink; she suddenly got to thinking about her orthodontic appointment tomorrow, which she is very apprehensive about.
 
 
When we get to the lounge, we find a quiet place to sit and watch the people hustling by outside. After a few minutes, we notice a man sitting at a nearby table with his laptop in front of him and a suitcase by his side. Since our braces don't allow much movement of our heads, we can't help but constantly look his way. His eyes are not focused on his laptop; they are focused on us, and he glances down wherever his eyes meet ours. We are used to having people stare at us, so we don't give it much thought. 
 
 
As we are enjoying our cocktails and Chris is sipping his Coca-Cola, the cell phone of the man watching us rings. He answers, and Judy, Chris, and I don't recognize the language he is speaking, but Blake is listening intently to the man's conversation.
 
 
"Do you know what language he is speaking?" I ask Judy.
 
 
"No, I'm not good with languages. How about your Chris?" Judy looks at Chris.
 
 
"All I know is a....." Blakely interrupts Chris and says, "Shut up! He's talking about us!"
 
 
We all listen carefully, with Blake being the one understanding what is being said, but he mentions our names often; He knows who we all are! The phone conversation lasts a few minutes, and when he puts down the phone, Blake boldly says, "I'm going to go over and talk to him!"
 
 
Blake walks over to the man and begins speaking to him. They shake hands, and the man pulls out a chair for Blake to take a seat. They talk for several minutes, but none of us know what is being said; however, we hear our names several times. Finally, Blake motions for us and says, "Come meet Jota. He's been reading your story, Leigh, and wants to meet all of you."
 
 
We had a wonderful conversation with Jota, with Blake translating for us. This is only the second time someone has recognized us from me telling our story online, the first being Shelly. Jota was a real gentleman and asked us many detailed questions about our braces and our lifestyles, and he was especially curious about our amputee friends and Collene with her paralysis. I wish Lori and Collene could have been here. 
 
 
Jota told us that he was traveling to meet a friend he made online who helps him with his own story-telling. He's also visiting the mountains to experience the cold weather and snow. Finally, we had to part ways. Jota needed to catch his connecting flight, but we promised to keep in touch. Hugs were exchanged, and our new friend was on his way.
 
 
We got on a shuttle to take us back to the bus, and once on board and heading home, Judy asked Blake, "So what else don't we know about you, Blakely? What language were you speaking?"
 
 
"Oh, Brazilian Portuguese. I was raised speaking it." Blake replied with a smile, showing her bands. "Three generations of my dad's family lived in Brazil; my grandparents came here when my dad was five years old."
 
 
"Oh, that explains your dad's accent; I could never place it." I said.
 
 
It was then that my phone rang; it was Lori. She asked if we would all like to come over for a steak dinner since Blake will probably be on a soft diet for quite a while after her orthodontic appointment tomorrow. We accepted the invitation and said we would be by around seven; we were just leaving the airport now.
 
 
****
 
 
When we got home, Joel and Jimmy got in the bus, and we headed over to Scott and Lori's home. Collie and Billy were there, along with Paul and Rebekah. Lori was much more upbeat this evening, and she said that she was no longer in as much pain, but her cast is extremely uncomfortable. Joel was quite taken by Lori's cast, and I know he would love to see me in one like it someday. Maybe if I am ever in a halo again, I'll let him cast me like this for a few days, but it sure doesn't look pleasant.
 
 
Scotty set up a folding table in Lori's room so we could all eat together. We had a great dinner, but it was quite difficult for Lori to eat with her body positioned as it is. She ate very slowly, with much help from Scotty. Chris ate slowly, too; he has spacers between his teeth so his braces can be applied tomorrow. We all felt really bad for Lori, but we know the unconventional treatment Ben has chosen for her will yield excellent results in the long run. As the evening came to a late close, Lori wished Blakely well on the next stage of her orthodontic treatment, and Blake promised to visit again after she gets her appliance placed tomorrow.
 
 
We then made our way home, and I could tell that Blakely was extremely nervous about what would happen at the orthodontist tomorrow.

Offline napacaster

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Re: Story: Leigh and Joel
« Reply #91 on: 12. September 2024, 05:38:50 AM »
Ch. 189 - Blake and Chris and the WEDD
 
 
Chris and Blake joined the regular breakfast crowd at my home this morning. Blake was wearing one of her Milwaukee braces today instead of her usual Kuehnegger braces with the orthodontic attachment. In fact, she wasn't wearing any of her protraction appliances at all. It was sort of strange to see her with just her bands and the little hooks sticking out of her mouth. With our Milwaukee braces, we can turn our heads a bit, but Blake, being used to her Kuehnegger brace, didn't even seem to try; she just always looked straight ahead. Since her new appliance will be affixed to her head instead of her spinal brace, hopefully she will soon get used to the bit of freedom her Milwaukee brace gives her since she will be able to wear it most of the day. Blake will only need to wear her more immobilizing and supportive brace at home and to bed. 
 
 
With several more people than usual, we had both bacon and sausage today, with eggs cooked to order. Chris and Blake were both apprehensive about what would happen today, but they both ate well. I guess they figure that their teeth will be quite sore for a few days, if not longer, so a good meal was in order. After eating, we all went to clean our teeth and appliances.
 
 
With our teeth and appliances nice and clean, Judy went to get the small bus; she will be our driver today and also part of Blake's support system. We are all concerned about how she will deal with the discomfort, both physical and emotional, that her new appliance will bring.
 
 
The first place we stopped was at Rogers and Jameson Orthotics. Blake finds talking to and being with Rita to be very comforting, so she wanted her to come along today. When we went inside, Collie and Rita were talking while Gary and Billy were in the workshop finishing up on Sarah's spare non-electronic legs. Billy has not done too many of the older-style prosthetic legs, and Gary was giving him some advice on working with these devices. A few minutes later, Emme arrived and was her usual happy and upbeat self. She was the other person that Blake wanted around today since they had formed a close bond at the resort when Emme was blindsimming. With everyone gathered, we made our way to Robbins Orthodontics.
 
 
When we arrived at the orthodontic clinic, Blake and Chris got checked in. Sally soon came out to greet us, and she was accompanied by an older man we had never seen before. 
 
 
"Good morning! I want you all to meet Dr. Walter Wilkinson. He will be assisting Joe today." Sally's orthodontia sparkled in the light as she spoke, introducing us to the doctor.
 
 
"Hello, I'm Walt. I am pleased to meet you all, especially my new patients." Walt spoke with a British accent as he shook our hands. "Blake and Chris, if you would please come with me, we need to discuss some final details of the procedure you both will be undergoing today."
 
 
Blake and Chris went with Walt and Sally, and the four of us just looked at each other for a moment in silence. The words 'the procedure you both will be undergoing' kept repeating in our minds. Then it all came to me, and I said,
 
 
"It all makes sense now! Chris is going to undergo the exact same treatment as Blake. I remember he stayed behind to talk to Joe at Blake's last appointment. Then he stumbled over his words when telling us he needed to talk to Billy about his leg braces. It wasn't about his KAFOs; it was to get a 3D scan of his head. Oh, and his short haircut—that's so the appliance can be easily placed. Chris's underbite is not that bad; he doesn't need such an intrusive appliance. He's doing it for Blakely."
 
 
The others had not seen the computer rendering of Blakely wearing the appliance, so I briefly described it. We have all studied orthodontics and are familiar with such devices, but not Dr. Wilkinson's new design. We talked a bit more, and Rita and I were very concerned about how Blakely would handle wearing this device, while Emme and Judy expressed jealousy. 
 
 
Sally then came and asked if we wanted to watch, but it would be on the monitor in Joe's office. As we went to Joe's office, Sally explained that the entire procedure was being filmed for a presentation that Walt is giving at a convention, and it would be best if we simply watched on the monitor. We got coffee on the way, then sat down on the couch in Joe's office to watch after putting Blake's Milwaukee brace aside; she had taken it off for the procedure. The image on the monitor was a split screen, with one side being Joe's view and the other Walt's. They must be wearing those little cameras on their glasses.
 
 
Chris and Blakely were in separate rooms. Sally was assisting with Blakely's procedure, and Joe's wife, Mary, was with Chris. Soon, the procedures began with Chris getting his spacers removed and his teeth cleaned, while all the appliances on Blake's upper arch were slowly removed along with her lower archwire. After Chris's teeth were cleaned, Joe quickly placed Chris's lower molar bands and metal brackets on the rest of his lower arch, along with his lower archwire with green ligatures. 
 
 
While this was happening, Blakely's teeth were being meticulously cleaned and polished. At this point, we could all tell that she was getting very nervous, with Sally often stopping to talk while holding her hand. Meanwhile, in the other room, the anchorage device was being prepared to be placed on Chris's upper arch. It had bands for all his teeth, with heavy archwires on both the front and back of each band, welded in place. There were also heavy wires that would run across the roof of his mouth, with two wires extending behind the front bands. It's sort of like a spiderweb of wires to keep his entire upper arch moving as one unit. Protruding from the front are two rods that are threaded from just beyond where his lips would rest to the ends.
 
 
The appliance was placed in Chris's mouth, and it seems to slip right onto his teeth without much force. It was then removed, cement applied, and finally fixed in his mouth. The doctors gave Chris a few moments to become accustomed to the device and the two rods protruding from between his lips while they went to check on Blake's progress. Once the doctors left the room, Chris got up and looked at himself in the mirror. He stared at the mirror for several minutes, shook his head, then sat back down in the dental chair and closed his eyes.
 
 
At this point, Blake's teeth were cleaned and polished. Joe entered the room and brought up some X-rays on the computer screen to show Blakely. He smiled as he pointed at the images on the screen and then looked at Blakely, who showed little emotion. The springs must have been working, but probably not fast enough. Joe instructed Sally to place her new lower archwire and ligatures, then begin her IV for sedation; Blake didn't want to be awake for the bulk of the procedure. Turning their attention back to Chris, he was shown the Wilkinson External Distraction Device, or WEDD, that would soon be secured to his skull and teeth. He just looked at it for a moment, then said something to Ben. There was no audio feed, but reading his lips, we thought he said. "I hope Blake will be OK." The WEDD was then held to Chris's head to locate where the anesthetic needed to be injected for the pins.
 
 
The WEDD is sort of like the orthodontic attachment on Lori's cervical halo brace. Chris's appliance is dark green in color and has a horseshoe-shaped halo that is lower in profile than a cervical halo; it fits close to his head. There are three holes, which seem large in diameter, on each side for the pins. The middle holes are just in front of his ears, and from this point, there is a part that goes down in front of his ears and curves around the front of his face. The two holes in this part would line up with the rods protruding from his mouth. It reminded Judy of the facemasks that football players wear.
 
 
Anesthetic was injected into the pin sites and allowed time to work. At this point, Blake's IV was just being prepared for her sedation. Soon, Chris's appliance was being placed, and now we understand why the holes for the pins are so large. The pins are actually stepped, with the part that screws into the halo being larger than the tip of the pin. This is to allow the torque wrench to fit the internal hex of the pin. The device was placed on Chris's head and carefully aligned with the rods protruding from his mouth. The pins were now all torqued, with Chris winching each time the wrench clicked, securign the device to his skull. When the pins were all in place, they were flush or slightly below flush with the outside of the halo, and small locking caps were placed in each one to prevent loosening. Unlike a cervical halo brace or the standard rigid external distraction devices, there was nothing sticking out to snag on clothing or bedding. Maybe this style of pin can be adapted to cervical halos; my halo pins were always getting caught on things. 
 
 
The final step of the process for Chris was to fit the two tensioners to the rods coming out of his mouth. They simply screwed onto the rods and were tightened with a torque driver. We would later learn that they have a ratcheting mechanism to prevent them from being loosened without a special tool. This is to prevent the patient from backing off the traction if it becomes too uncomfortable. These ratchets would be tightened every other day, and Walt had designed them so Blake and Chris would wear the devices for about the same amount of time, despite Chris's teeth needing to move less than Blake's. Chris got up from the chair, took a long look in the mirror once again, and then left the room. The doctors went to tend to Blake, who was now sound asleep.
 
 
Chris joined us in Ben's office to observe the rest of Blake's procedure. We asked him how he felt, and he said there was a lot of pressure on his head from the pins, but not too much on his teeth. Chris now has a very bad lisp, and his cheeks and upper lip are pushed out by the bulky appliance in his mouth. Judy said that he looked really cute with his appliance; he blushed and quietly said with a heavy lisp, "I hope Blake thinks she looks cute in hers. I think this is going to be the worst thing so far for her; she is such a fragile girl, but I love her dearly." Emme was getting ready to ask Chris something, but our attention turned to the monitor. Blakely's procedure was beginning.
 
 
The same sort of appliance that was placed on Chris's upper arch was placed in Blakely's mouth. There were several adjustments that had to be made to get it to fit properly, probably because the scan it was made from was several weeks old. Chris thought that his appliances fit more easily since he got his scan done last week when he got his spacers placed. Finally, the appliance was cemented into Blakely's mouth, and the cheek retractor was removed from her mouth. She looked so peaceful lying there asleep in the dental chair with her upper lip resting on the rods and her mouth slightly agape.
 
 
The external distraction device was trial-fitted to her head. It was just like the one Chris is now wearing, but custom made to fit closely to Blakely's head and was dark purple in color. Several patches of hair were neatly shaved where the two sets of rearmost pins would be placed. The device was put in place over the threaded rods protruding from between Blake's lips and held in place by Sally while Joe and Walt placed the six pins. Since Blake is sedated and sleeping soundly, no anesthetic injections were used. The pins were torqued, and the locking caps were placed over the ends. Finally, the ratcheting nuts were threaded onto the rods coming from Blake's mouth and set for an initial torque. The procedure was over in only a few minutes.
 
 
Joe and Walt seemed well pleased and examined Blake’s and her new adornments, then shook hands. It does appear that Dr. Wilkinson's device will be a lot more comfortable to wear than other external distraction devices, and there is no distracting vertical bar in one's line of sight or anything sticking out to catch on to things. Mary removed Blake's IV, and Sally came to get us so Chris could be there for Blake as she woke up. We are all hoping for the best, but we are prepared for the worst. I hope Chris can handle it if Blake has a meltdown like she has had before; he is going through a lot himself, all in support of Blake.

Offline napacaster

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Re: Story: Leigh and Joel
« Reply #92 on: 15. September 2024, 16:18:09 PM »
Ch. 190 - Blakely Wakes Up
 
 
Chris is holding Blake's hand as she slowly awakens from her heavy sedation. As she wakes, she feels Chris holding her hand, and without opening her eyes, she groggily says, "Chris... Is that you?"
 
 
"Yes, it's me, Blake. How are you feeling, honey?" Chris holds Blake's hand tighter while speaking with a strong lisp.
 
 
"I have a headache, Chris. A really funny-feeling headache." Blake's voice is low and weak.
 
 
"I know; my head hurts, too. It will be OK." Chris comforts Blake.
 
 
Blake slowly begins to open her eyes and sees Chris wearing the WEDD appliance fixed to his skull. "What is that thing on your face, Chris? You look funny." A slight smile comes to her face, and she giggles.
 
 
"It's the same thing you are wearing, dear. We are both wearing them to help fix our teeth." Chris replies.
 
 
Forgetting why she is at the orthodontist, her eyes open wide, and in a worried voice, Blake says, "I'm... I'm wearing one of those, too?"
 
 
Blake lets go of Chris's hand and brings both her hands to her head. She runs her fingers along the halo that wraps around her forehead and feels the pins in the narrow gap between her halo and her head. Then her fingers follow the part that extends in front of her mouth, which is attached to the rods protruding from between her lips. Now wide awake and with a stronger voice, Blake says, "I... I look like you, Chris?"
 
 
"Well, not exactly; your appliance is a really pretty purple color, and you look great wearing it, too." Chris says with a smile, showing all the bands and wires on his upper teeth.
 
 
"I do?" Blake questions.
 
 
"Yes, you do. How's the pain? The pins in my skull hurt, as do the braces on my bottom teeth. However, I only feel slight pressure on my upper teeth." Chris describes how he is feeling.
 
 
"My head hurts a lot, and this thing in my mouth feels strange. There are a lot of big wires running across the roof of my mouth. Wait, pins in your skull? That means I have them, too." Blake is still a bit out of it from her sedation and looks scared and worried.
 
 
"Yes, that's right. Don't you remember what Joe and Walt told us? There are six pins that secure the devices to our skulls. You remember seeing the rendering Joe showed you a few weeks ago?" Chris inquires.
 
 
"Oh, yes, sort of. I was kind of out of it that day, and I guess today, too. Can I see what I look like?" Blake wants to see her new look.
 
 
"Stay in the chair, Blake. Leigh, can you hand Blake that mirror?" I do as Chris requests.
 
 
I hand Blake the mirror, and she silently looks at her reflection for several minutes. She moves the mirror around a bit and turns her head from side to side to get a better view of her new WEDD appliance. Blake opens her mouth to try to get a look at what has been affixed to her upper teeth. We are all looking at each other, hoping for the best, but we are prepared for the worst.
 
 
Blake lowers the mirror and hands it back to me, looks to Chris, and with a smile says, "This is so cool! I, oh, I mean we, look so cute wearing these things! I'm so glad you decided to get the same treatment as I need, Chris. It shows how much you love and care about me, and it will make this much easier on me. But there is only one problem: I don't think we can kiss anymore. There is too much metal in the way."
 
 
We all laughed and were pleased that Blake is doing so well accepting her situation. However, we know that things could take a turn for the worse emotionally for Blake, so we all tried to be very upbeat and supportive of both her and Chris. This will be a difficult time for them, especially when they go out in public and back to work. Chris helped Blake up from the chair, and we all hugged and offered words of encouragement, with Emme and Judy expressing jealousy; they wished they were wearing appliances like Chris and Blake are wearing.
 
 
We made our way to Joe's office, where Rita helped Blake into her Milwaukee brace. She reminded Blake that she no longer needs to wear her Kuehnegger brace with its orthodontic attachment during the day anymore. Instead, she can wear her Milwaukee brace for ten hours a day and her Kuehnegger brace the rest of the time, and of course, she no longer needs to use the orthodontic attachment.
 
 
As Blake was putting her blouse back on, she asked Rita, "But I can still wear my big brace all day if I want to, can't I?"
 
 
Rita replied, "Of course you can, Blake. You can wear any of your braces during the day, but be sure to wear your Kuehnegger for at least fourteen hours a day. Oh, never forget to do your exercises either; they are very important."
 
 
With excitement in her voice, Blake said, "Oh, that's great! I really like wearing my big brace; it's so supportive. I love how it cradles my head; it feels so good to wear it."
 
 
With that said, we thanked the doctors and assistants. Joe said he would like to see both Chris and Blake before they go home and to call if there are any problems. He also asked me to teach the kids how to care for their pins since I am so well versed from my almost year-long halo brace adventure. We said goodbye to everyone, with Emme and Rita going off to work. We got into the bus, and Judy began to drive us home.
 
 
On the way home, I asked Blake and Chris how they were both feeling. Blake said that the pins securing her halo were the worst part, especially the pressure, but it wasn't too bad. Chris agreed and said that his bottom teeth were starting to become tender, but his upper teeth were still feeling pretty good. They both had lisps, with Blake's being considerably different from when she was wearing her previous appliances; it was much less pronounced. I reassured them that the pain from the pins would diminish in a few days, but from my experience in a cervical halo brace, the pressure would remain to some degree, but it should be less since their pins are smaller. They found my words reassuring and comforting.
 

******

 
Over the next few days, Chris and Blake got used to their new orthodontic appliances and visited friends to catch up and show off their WEDD appliances. Blake got her Milwaukee and Kuehnegger braces adjusted by Billy, and she is making great progress with her curves. The discomfort from their halo pins has diminished, but the pressure on their teeth increased when the first of their every-other-day adjustments were made. Overall, they're doing well, and they both are wearing their KAFOs, with Blake continuing to wear her Kuehnegger brace even during the day while Chris prefers his Milwaukee brace. It seems that Chris very much enjoys supporting Blake by wearing his recreational leg and back braces as much as possible.
 
 
We were all so glad to see Blake doing so well since she has had such trouble coping with things in the past. Maybe it is because she has Chris in her life now, or maybe it's just her becoming stronger when it comes to her health issues. The only thing that was taking them a while to get used to was the weight of the large metal appliance secured to their heads. Even though it was made from a lightweight alloy, it still feels a bit heavy, and their spinal braces help to support their heads and the extra weight; maybe that is one reason Chris has been wearing his back braces so much.
 
 
Well, early this morning, I got the call I was dreading...
 
 
L: Hey Chris, what's up?
 
 
C: Hi Leigh. I hope you can help; Blake is having a really rough time this morning.
 
 
L: Oh no! What happened?
 
 
C: Well, I told her that I made us reservations at the hotel in the city for a few days so we could visit the museums and galleries like we did before. I thought it would make her happy, but she started to cry. Blake said she didn't want to go out and be seen wearing her WEDD appliance and that she is having trouble eating and drinking, too. Worst of all, she misses being able to kiss me. Of course, I miss kissing her, too. I have to agree that eating with that thick metal bar in front of our mouths is quite difficult, and we must drink with straws, which are hard with the rods between our lips. You and your friends have helped Blake in situations like this before, and I need your help now.
 
 
L: OK, well, get her up to our place for breakfast and just follow my lead. I have a plan.
 
 
C: OK, thanks, Leigh. We'll see you soon.
 
 
When Blake and Chris arrived, it was obvious that she had been crying. It was a cool morning, and she was trying to hide all her braces by wearing long, loose pants, a turtleneck sweater, a beanie pulled over her halo ring, and a scarf wrapped around her face. Only a small part of her appliance could be seen in front of her ears. When the other arrived, the mood was rather somber, and Blake only picked at her meal. Everyone finished their meal and went on their way, leaving Joel, Chris, Blake, and myself alone.
 
 
"Hey Chris, would you like to see our cast room? It is where we apply our recreational casts and keep our supply of orthopedic braces," I said, not remembering if I had shown Chris our cast room, but he definitely knows of our interests.
 
 
"No, I don't think you have seen your cast room; I would like to see it. I know that Blake really loves wearing casts." Chris took my lead well, and Blake's eyes lit up.
 
 
"Well, come on and I'll show you." I grabbed my crutches and got up, with everyone following me to the cast room.
 
 
"Wow, this is amazing! It's just like the cast room at the hospital when I broke my leg." Chris is impressed. "What's that metal frame in the middle of the room?"
 
 
"That's our traction frame. It's for applying large body casts, like you saw Judy wearing in those pictures she showed you and Blake. I could teach you how to apply some smaller casts, Chris, if one of the ladies would volunteer." Joel says it with a smile, glancing at Blake.
 
 
"Me...Me...Me!!! I volunteer." Blake excitedly begins to take off her loose pants and sweater, then hops up on the table.
 
 
Joel proceeds to explain how casts are applied and demonstrates it to Chris by putting Blake's left arm in a purple SATS, just like she has worn before. Then Blake says, "Show him how to put a cast on my leg, Joel!" Joel gathers more material, including a set of knee hinges and the proper-height walking heel to compensate for Blake's short left leg. Chris removes her left KAFO, and Joel begins the casting process with help from Chris. Soon, Blake is wearing a big purple hinged LLC with a toeplate and very tall waking heel, and she is all smiles.
 
 
"Oh, this is great, guys! Thanks for the casts; they are so comforting to wear. Once they are dry, let's go get ready for our trip to the city, Chris," Blake happily says while hugging Chris.

 
Chris helps Blake get dressed, and they are on their way, with Chris giving me a wink and a thumbs up.
 
 
Over the next five days, Blake and Chris sent us many pictures and videos. They are having a great time in the city, and Blake seems to really be enjoying herself, showing off her casts, braces, and orthodontic appliances. In almost every picture, she is wearing a short skirt and a crop top to show off her casts and braces. Blake is even on crutches in several videos, with the hinge on her left knee locked at an angle. There was even a picture of Blake with another girl about her age wearing a traditional rigid distraction device, and they were both smiling. It seems that a couple of casts have once again brought Blake the comfort and security she needs during a trying time.
 
 
When they got back, Blake and Chris went for a quick checkup with Dr. Joe. He was very pleased and said that Blake's upper teeth have moved more in the last two weeks than during her entire treatment up to this point. He also said that Chris is making good progress and that they might be able to get their appliances off early. Blake decided to wear her casts for a full six weeks and get them removed when they come for their next orthodontic checkup. Blake's folks were a bit shocked to see their daughter, and likely future son-in-law, wearing their appliances and Blake in her casts, but they were very supportive.
 
 
Collie had our entire group of friends over the night before Chris and Blake were to go home. She cooked a great Italian dinner with the recipes that Flora had taught her. Scott and Lori, who is still in her very uncomfortable corrective halo cast, joined us with Lori strapped to my old reclining wheelchair I lent her. A good time was had by all, with Blake very upbeat and happy once again. The next morning, Blake and Chris joined us for a final breakfast together, and then they were on their way home to Kings City.
 
 
A few days later, I got a text from Blake:
 
 
"Hi Leigh! Thanks for everything during our visit. I am really enjoying my casts; they are so comforting to wear and make my worries fade away. Chris and I are doing great, and we have very little discomfort from our appliances now. We have even mastered eating and drinking, but kissing is still impossible. I'm doing great at work, and everyone is so supportive. Chris got teased a bit at work; they guys now call him 'Robo-Jaw, but he's taking it in stride. We'll see you in a few weeks. Love, Blake and Chris."

Offline napacaster

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Re: Story: Leigh and Joel
« Reply #93 on: 15. September 2024, 16:20:26 PM »
Ch. 191 - Lori's Progress
 
 
We had dinner at Lori and Scotty's the other night. When we arrived, Lori was strapped in her wheelchair with her KAFO on her crippled right leg. Her chair was positioned so she was upright, with her braced leg taking some of her weight. Her upper body, in its contorting halo cast, was firmly strapped to the chair. I crutched over to her, and we hugged as best we could with my braces and her casted body.
 
 
Lori said that she was doing quite well at this point; there was no longer much pain, but that her cast was extremely uncomfortable as she warmly smiled, showing her bands. We talked for a little while about her cast, her upcoming appointment for X-rays, and the new cast she might be getting. Lori said that was one reason she asked us over tonight; Scotty wanted to ask Joel if he would help getting her to her appointment. She wanted me to accompany them, too. The appointment is on Thursday at Dr. Moore's office, and of course Joel and I said we would help.
 
 
We had a wonderful evening together. Scotty is an excellent cook with Lori's guidance. After dinner and dessert, we went outside to take in the warm, peaceful evening. My attention was drawn to Lori's large therapy pool which she has yet to enjoy, and I really wanted to take a swim. I have not gone swimming since I let go of my legs and thought it would be fun. Joel ran home and got my swimsuit and waterproof braces, then soon returned. Scotty led me to the spare room to change, and soon I was crutching out to the pool in my waterproof braces with sport sandals strapped to my feet. 
 
 
Once I got to the pool, I decided to take off my braces and let my limp body enjoy the feeling of weightlessness in the water. Joel helped me, and I used the grab bars to pull myself into the warm water. Oh, it felt so good; I have not been swimming for a very long time. Everyone enjoyed watching me move about in the water using only my arms, and I really enjoyed floating on my back and looking up at the stars. Being in the water really felt good, with my body completely and comfortably supported without wearing any of my braces. Lori said that she was excited to soon be able to get in the water, especially seeing how much I was enjoying it.
 
 
Finally, my arms were getting tired and my back was getting sore, so I had Joel help me out of the water and put me back in my braces. Then I decided to get back into the water, wearing my braces, to see what it was like. I carefully used the handrails to walk down the steps and get in the water. Being in braces in the water felt different, and it was not as pleasurable as swimming without them. I climbed out of the pool and wrapped my towel around my body. At this point, Lori was getting tired and was experiencing quite a bit of discomfort from the way her head was positioned in her halo. I simply wrapped up in an extra towel, and Joel gathered my other braces and clothing. We said goodnight to our friends and headed home. Once home, Joel helped me to bathe and clean my orthodontic appliances. He then placed my large splint in my mouth, locked my jaw shut around it, carried me to bed, and strapped me in my body brace for a good night's sleep.
 
 
****
 
 
Well, Thursday morning is upon us. Joel helped me get into my brown HKAFO-Milwaukee brace with mid-heeled brown oxfords. He dressed me in a long blue skirt and a white blouse. I did my makeup, put my hair up into a bun, put on my wire frame glasses, and put on my black headgear to complete my look for the day. As I put my hair up in a bun and did my makeup, Joel got dressed, and soon we were having breakfast with our friends. After breakfast, Joel got the little bus, I crutched out and used the lift to get on board, and we were on our way to Lori and Scott's place.
 
 
When we arrived, Scott was just getting Lori strapped into her wheelchair. She was wearing a loose-fitting dress. She didn't have her KAFO on her right leg, but she was wearing her hand and looked very nervous. Scott asked Joel to check the straps securing Lori to her wheelchair. With her chair reclined, Scotty used the attendant control to wheel Lori out to the bus, and the guys got her on board and her chair secured. Once on the road, I asked Lori how she was feeling today.
 
 
"I'm really scared, Leigh. I hope everything has been going OK, and I'm so worried that things might not be progressing well. I'm so miserable in this cast; it's extremely uncomfortable and often painful. It has been the worst part of my recovery." Lori said with a tear in her eye.
 
 
"I can't imagine what it must be like for you. I have worn some very immobilizing casts, but never one that contorted my body like yours does." I said with concern.
 
 
"It has been really tough, but I try to keep a positive outlook. However, the prospect of possibly needing an even more extreme cast scares the hell out of me. How much more can they do to me? My body feels like it is being tied in a knot." Lori began to cry.
 
 
Taking Lori's hand, I say, "I don't know what will come next for you, Lori. Remember that Ben said you might not need a second cast, just an adjustment to the postion of your head and neck? We'll just have to wait and see what Ben and Dr. Moore say. Keep your chin up, kid!"
 
 
Lori's tears turn to laughter, and she said, "How can I not keep my chin up? This cast and halo force me to keep it up!"
 
 
With the mood lightening a bit, the rest of the ride was pleasant, and we soon arrived at Dr. Moore's office. We parked in the back so it would be easier to get Lori's wheelchair inside, and she also wouldn't have to face other clients. Scotty and Joel got Lori and I off the bus, and the receptionist buzzed us in. One of Dr. Moore's assistants was waiting for us inside and took Lori directly to the X-ray room and asked the rest of us to wait in the room we visited before with Blake.
 
 
It was not very long before Lori was wheeled into the room. She thanked Will and Bob, the techs, for taking good care of her and making her as comfortable as possible. It was clear from her voice and demeanor that Lori was terrified about what would be coming next for her—she feared being placed in an even more immobilizing and contorting cast. After quite a wait, Dr. Moore entered the room. She was now in a wheelchair with carbon fiber braces on both legs. From the way she was sitting in her wheelchair, I could tell that her braces were HAKFOs. Dr. Moore was dressed almost exactly like me, and I think we were wearing the same shoes. She was smiling and very upbeat when she greeted us, with Lori trying not to show her fear.
 
 
"Good news, Lori!" Dr. Moore cheerfully said, "You are making excellent progress. After consulting with Ben, we determined that you will not need to have your cast changed; you will just wear this one for another month, then you can begin wearing a brace and begin PT. However, we do need to re-position your head and neck a bit, but this won't be too uncomfortable. We'll also change your catheter today, and I will get the prescription for your braces over to Rogers and Jameson so they can be fabricated."
 
 
Lori was overjoyed that she would not have to go through the ordeal of getting a new cast. A look of calm and peace came to her face when she heard all the good news. Dr. Moore then said that since her disability has increased, one of her assistants would be in shortly to adjust the halo portion of Lori's cast. Feeling a bit bold and curious, I asked Dr. Moore, "I don't mean to get too personal, but it appears your condition has worsened. Are you now wearing HKAFOs?"
 
 
Smiling warmly, Dr. Moore replied, "Please, call me Pam. I'm trying to not be so formal these days; the rapid changes to my body are making me feel different about a lot of things these days. Yes, Leigh, my condition has worsened, and you are correct; I am now wearing HKAFOs. I can get around on crutches, but I'm becoming most comfortable in my wheelchair."
 
 
"I really like your braces; they look good on you. Did Billy make them for you?" I ask.
 
 
"Yes, Billy at Rogers and Jameson made my braces. Billy and Collene are such nice people, and I'm so glad they are taking over for Gary and Rita." Pam smiles.
 
 
"They are very dear friends of ours, with Joel and I helping both Collene and her sister Judy get a start in life here. Collene's sister Judy is like a daughter to us, and we gave her and Jimmy the house they live in and helped Billy and Collene buy theirs. We are all neighbors." I see Pam looking at me with curiosity.  
 
 
"Can I ask you something very personal, Leigh." Pam nervously says.
 
 
"Sure." I know she will ask about why I wear braces.
 
 
"If you don't mind, what condition do you have that requires such extensive bracing, and is your extensive orthodontic work related to it?" Pam asks with a slight smile.
 
 
"I don't mind you asking, but it's a long story. You seem understanding enough that I'm comfortable telling you. Can we set a date for an afternoon together to talk?" I ask with a smile, clearly showing many of my orthodontic appliances.
 
 
"Sure, that sounds great, Leigh. I think I would really like to get to know you better; you seem to be an interesting person, and..." Pam is interrupted by a knock at the door, and a young woman wearing scrubs enters the room.
 
 
"This is Addison; she will be adjusting your halo for me, Lori." Pam introduces us to Addison, who seems quite fascinated with the braces I'm wearing, especially my colorful metallic smile.
 
 
"Please, call me Addy. "The young woman smiles, showing her clear orthodontic braces.
 
 
Pam shows Addy some information on the computer, and then Addy gets the tools necessary to make the adjustments to Lori's halo. Pam warns Lori that the procedure will not exactly be pleasant, and she will feel some pulling on her upper spine. With Pam instructing, Addy loosens the attachments for the four rods on Lori's halo, then re-positions her head, tilting it farther to the right and back while applying a bit of traction. Lori whimpers, and tears come to her eyes, but she realizes that the adjustment is necessary and that it is much better than the ordeal of getting a new cast. Finally, the rods are tightened, and Lori sighs a sigh of relief—the adjustment is complete. At this point, I notice that the space between Lori's shoulders and her cast has closed up quite a bit; Addy has stretched her upper spine quite a lot.
 

Addy takes Lori in her reclining wheelchair back to the X-ray room for a final set of pictures. While we waited, Pam and I set a date to have lunch and chat, and I can tell she is very curious about my situation. Soon there is a notification on the computer, and Pam reviews the new X-rays that were just taken and is satisfied with the results. Addy returns with Lori, and Pam says, "One last thing, Lori. We need to replace your catheter. Addy will take care of that for you. She's very gentle, and it will not be uncomfortable at all for you, Lori. Addy is the best; she takes excellent care of me." As Pam says this, Addy blushes.
 
 
Joel and I excuse ourselves to use the restroom—not because we need to, but to give Lori some privacy. When we return, Lori is ready to go, and we all thank Pam and Addy for everything today. As we are leaving, Addy says to me, "Leigh, I really like your orthodontic braces; they look so cool! I got these clear ones, and I hate them. I only got clear because I thought it would look more professional, but I was wrong. No one cares about an adult wearing braces, and these are so hard to keep looking bright and clean. See how the archwires are chipped already, and I only got them changed two weeks ago. Your braces are so colorful and sparkling bright; I really like them." Pam then looks at my smile, then dreamily towards Addy; it seems their relationship is far more than just professional.
 
 
I notice the chipped white archwires in Addy's mouth and how her brackets are slightly stained. "I can see that your braces are difficult to keep looking great. My orthodontist is Dr. Joe Robbins. Set up a special consultation with him and tell him you are a friend of Leigh Jacobson."
 
 
"Oh, thanks, Leigh. I will call his office this afternoon!" Addy hands me her business card with her cell phone number and personal email written on the back. "Send me your information; I would really like to talk to you someday when we have some time."
 
 
"I will, Addy." I cheerfully reply as I give Addy a gentle hug.
 
 
With that, we all get on board the bus and head home. Lori is quiet, and from the look in her eyes, she is in extreme discomfort right now. When we get to Lori and Scott’s home, Joel helps to get Lori into her bed as I speak comforting words. I remind her that she is half way done wearing her cast, and soon she will be in her back brace and be able to exercise, swim, have fun, and even start working again. This brightened her mood, but she was still in a lot of pain. However, a smile did come to her face.
 

Poor thing; she had endured so much.

Offline napacaster

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Re: Story: Leigh and Joel
« Reply #94 on: Yesterday at 15:40:02 »
Ch. 192 - An Afternoon With Pam and Addy
 
 
It took Lori a few days to get as comfortable as possible in her halo-hip spica cast. The position in which her halo holds her head is even more awkward than before, and eating is a real challenge for her. However, the pain of having her upper spine stretched and contorted so much has diminished. 
 
 
Luckily, Lori has a few things going on around her home to distract her from her immobilization and discomfort. Scotty puts her in her wheelchair every morning so she can watch the workers doing projects around their house. They are getting a large hot tub installed and handicap hoists installed for both it and the swimming pool. The entire patio area is being redone with an outdoor kitchen, too. Lori can't wait until she gets her new spinal braces and can once again be on her feet, one real and one prosthetic, and host a party for all her friends.
 
 
****
 
 
Tonight, we are meeting Pete and Emme for dinner at Ranch Gordo. I think that Shelly should be out of her SLWCs by now and likely wearing ROM boots. When we arrived, Pete and Emme were sitting outside enjoying a cocktail, with Emme wearing patches over both her eyes—another evening blindsimming for her. We join them for a drink before getting a table for dinner. As always, Shelly was our waitress, and she was in fact now wearing ankle ROM boots, but they looked custom-made. Pete compliments Shelly on how well she's getting around and that she looks lovely with her orthodontic braces and bright pink combination headgear. Shelly responds:
 
 
"Oh, I love my braces and headgear! I'm finally getting my teeth fixed up, and I really enjoy the process. Joe is so gentle, and my braces never cause me any pain or discomfort. Oh, these boots Billy made for me are so cool, too. He gave me a series of insoles that fit in the boots and gradually get higher at the heel. I started low and have worked my way up to a four-inch lift at the heel. Generally, they are used in the opposite order and without the ankles free for people with Achilles injuries. I'm using them differently, so I can get used to wearing high heels again without risking injury to my ankles."
 
 
"Oh, something else that Billy did was make detailed castings of my feet and legs. He said he has a client who requested extremely detailed prosthetic feet and legs, and he thought mine were perfect for her. So, somewhere there will be a girl with my cute feet and sexy legs!"
 
 
We had a wonderful meal as always, and it was good to see Shelly enjoying her orthopedic and orthodontic adventure. She is truly one of us, and I wonder what she will desire to experience next. Anything is possible.
 
 
****
 
 
I'm finally meeting Dr. Pam Moore and her assistant, Addy Wilcox, for lunch and a chat today. It was a bit of a challenge to schedule a date with how busy they are, but we will have all afternoon to spend together after lunch today. I know they both are very curious about my situation, and with Pam being a doctor and good friends with Ben, I must tell the truth about my braces and letting go of my legs. Outside of my group of close friends, no one knows the full story about my legs and my braces. I'm a bit nervous talking about it with a doctor and her assistant, especially since Pam has a real disability. I am also torn about how I should present myself. Should I use my wheelchair or crutches? Should I hide my braces as best I can or let them be seen? Should I wear my headgear or not? I just don't know; I don't want to offend.
 
 
With the nice weather today, I decided to wear a long, flowing dress, use my crutches, and my twin facebow interlandi headgear with black straps; I can always take it off at the last minute. Pam has seen me wearing it before, but Addy has not, and I think she is really curious about my colorful bands and appliances. I wonder if she has talked to Joe about getting colored brackets. It's been a few weeks, so she might have gotten them.
 
 
I pulled into the parking lot at Mimi's Cafe and parked near the entrance. At the last minute, I removed my headgear and put it in my purse, then crutched inside. I looked around and didn't see Pam and Addy, so I took a seat in the waiting area. The ladies soon arrived, and they were dressed casually like I was, with Pam rolling along in her wheelchair. When Addy greeted me with a smile, she had iridescent light blue brackets on her front four upper teeth; the rest of her teeth were banded with bands of the same color; they looked great. We got a table near the back where it was quiet, and I sat across from the ladies. From the way Pam and Addy interacted, I could tell their relationship was far more than professional, just as I had suspected.
 
 
Addy was very talkative and told me about going to see Joe to get her new braces, which it is obvious that she badly needs. She even admitted to me that she has a 'thing' for braces and really enjoys her new colorful braces that match the color of her eyes. With Addy admitting that she has a 'thing' about braces, I told her and Pam about my love of orthodontics and how very little of what I have in my mouth is actually necessary. However, I didn't tell them that all my appliances have been permanently bonded to my teeth and they cannot ever be removed. Addy was excited to meet someone with a similar interest in orthodontics, and Pam seemed enthralled by our sparkling smiles. This left me wondering if Pam has a thing for braces, too, and maybe that Addy has an interest in orthopedic braces and disabilities, too.
 
 
We ate our meal without any discussion about my leg and back braces. What was mentioned is that Addy has been working with Pam for about fifteen years as a physician's assistant. I was thinking from her looks and playful demeanor that Addy was in her late twenties, not her mid-forties. Pam also said that as her condition has progressively gotten worse, she needs more and more help with her daily activities. About eight years ago, the lease on Addy's condo was up for renewal, and Pam asked her to move in with her as her caregiver. Soon after, they fell in love, and they have been in a very happy relationship ever since. 
 
 
After we finished lunch, Addy and Pam asked me to join them for an afternoon together at their home. Of course I accepted their offer; I wanted to learn more about them, and I'm sure they have a lot of questions for me. After all, Pam did want to talk privately with me about my situation. I followed them out to the parking lot on crutches, with Addy pushing Pam's wheelchair towards an Aston Martin DBX. Addy helped Pam into the driver's seat, and she then put the wheelchair in the back of the car and said for me to follow them as she got in the passenger's seat. Pam cranked the engine, and it sounded amazing! 
 
 
I followed the blue DBX that sparkled in the sunlight like Addy's braces, and soon I found myself in the most exclusive part of town. The Aston Martin turned into a driveway, and the wrought iron gate opened. The driveway must have been at least a mile long and ended at a large house that overlooked our entire town. The garage door opened and the DBX pulled inside, and that is when I noticed the cute little car parked in the garage—a make I had never seen before—Wartburg.
 
 
I parked, got out of my car, and crutched over to the little car. As Addy was helping Pam into her wheelchair, she said, "It's a 1960 Wartburg 311 that belonged to my father. He bought it while serving in the Army in Germany and brought it home with him. It's so cute, isn't it?"
 
 
I had to agree that the little cream and blue car was cute, and I told Addy my husband would love it with his interest in communist-era cars. Addy pushed Pam's wheelchair into the house, and I followed. We got comfortable in the large living room with big windows that gave a full view of town. I could even see the bus shop and an old Greyhound Silversides reflecting the sunlight as it pulled out of the parking lot. 
 
 
Pam then asks me about the condition that requires me to wear the orthopedic braces that I wear. I matter-of-factly told my story, a story you all know well, and it was accepted without question. Pam was quite impressed with the extremes I went to to let go of my legs. I told her about how Judy had done the same thing and that she was my inspiration. Addy said that, as Pam's condition worsened and they became closer, she discovered that she was a devotee. Both Addy and Pam asked me a lot of questions, and I was open and honest. It was nothing that you already don't know, so I'll skip the details.
 
 
It was then that, with a smile, Pam sternly said, "Addison, shouldn't you be wearing your headgear? Dr. Robbins said you should be wearing it whenever you are not at work."
 
 
Addy turns red and says, "But we have a guest, Pammie. I like my new colorful braces a whole lot, but I'm not fond of my headgear at all."
 
 
"Leigh's headgear is much more complicated than yours; I've seen her wearing it before." Pam smiles at me.
 
 
"Very well, dear, I'll go put it on. I know how much you enjoy seeing me wearing it." Addy smiles mischievously at Pam.
 
 
As Addy goes to put on her headgear, I get mine out of my purse. Pam wheels over and helps me get my facebows in place and attached to my interlandi headgear. When Addy returns, she is shocked to see me in my rather complex headgear. "Oh my, that is quite the setup you have to wear, Leigh. Please tell me it is an actual part of your treatment, not something extra for your... um... pleasure."
 
 
I smiled at Addy and Pam, then I said, "My headgear is simply a fashion accessory for my pleasure. I truly enjoy wearing it."
 
 
"You only wear it at home, right?" Addy questions.
 
 
"No, I generally wear my double-facebow headgear all the time. I really like how I look wearing it and the feeling of my facebows between my lips and my Interlandi straps on my head." I smiled once again.
 
 
"May I please take a look at what else you have in your mouth?" Addy sits down next to me.
 
 
"Sure, Addy, I love talking about all my braces. Take a look." I open my mouth, and Addy and Pam examine my orthodontic appliances. I explain what all my appliances are normally used for and why I enjoy wearing them simply for pleasure. Then I demonstrated my modified Herbst, which allows me to lock my jaw in any position. I clenched my teeth around my splint, locked my jaw in place, and left it like that for the rest of our visit. Both ladies are impressed with how well I can speak with my jaw completely immobilized.
 
 
"See, Addy, there are other people like me. I'm not so strange after all." Pam smiles at Addy.
 
 
"Well, if you like braces so much Pammie, why don't you get all the same stuff as Leigh has? I would sure like to be able to lock your jaw shut when you're in a bad mood and start yelling." Pam leans over and kisses Addy, taking her facebow between her lips.
 
 
"Maybe I will after I retire, Addy. With my condition getting worse, I don't think I'll be working much longer." Pam's expression is a mix of happiness and sorrow. "So, Leigh, let me tell you about my physical condition."
 
 
Pam explained that both she and her daughter have a degenerative nerve condition that is likely genetic. I remember Sam telling me about going to see Dr. Moore to get her Milwaukee brace prescribed years ago and how the doctor mentioned her daughter wears the same type of brace as Sam. I also remember Sam telling me that her doctor wore an AFO on her left leg at that time. Pam explained that in her case, she started to lose movement and sensation in her left foot and leg, which finally required her to wear a KAFO.
 
 
As Pam's condition progressed, she had to wear KAFOs on both legs and use crutches or a wheelchair. Now she is in HKAFOs and using a wheelchair almost exclusively, but like me, she can get around easily on crutches. I asked her if she had any idea how quickly her condition would worsen further.
 
 
"I don't know Leigh... No one knows. If I live long enough, I'll likely end up completely paralyzed and on a ventilator, but hopefully it won't come to that. Things get worse, then stabilize for several years. Only time will tell." Pam explains her situation as tears come to Addy's eyes. Pam hugs Addy and says, "It's OK, dear; hopefully things won't get too bad too soon. I know you will take good care of me and that I love you very much."
 
 
Now that we had all learned quite a lot about each other, the conversation turned to lighter topics. Pam and Addy talked about traveling after Pam retires, and I told them about the redevelopment project that Joel is involved with. They had read about the project in the news, and I explained how the area around our shop is being reinvented. The old factories and warehouses are being converted to housing, retail, and commercial. What is hoped is that the neighborhood will become its own self-contained little town with everything the residents need. Someone could live, do their grocery shopping, go to work, and have fun possibly all in the same building. Pam was glad the old buildings were being saved and expressed interest in investing in the project. 
 
 
All in all, we had a wonderful chat. I could tell that, even though they have worked and lived together for a long time and love each other very much, Pam and Addy are still learning about each other's minds and bodies. Their playful banter was heartwarming, and Addy is very concerned about Pam's health. We agreed to get together often, and they want to meet all my friends. It was a great day, and I enjoyed talking openly to new friends about my lifestyle.

Offline napacaster

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Re: Story: Leigh and Joel
« Reply #95 on: Yesterday at 15:40:42 »
Ch. 193 - Good Progress
 
 
I'm expecting a call from Chris or Blake. It's about time for them to get their orthodontic progress checked and for Blake to get her spinal braces adjusted and her 'comfort casts' removed. That call came today, and they will be making a quick overnight visit on Friday.
 
 
****
 
 
Blake and Chris arrived around nine this morning and got settled into the guest suite. They both looked great wearing their WEDD rigid distraction devices that are firmly secured to their skulls and their upper teeth. Blake had her hair playfully styled around the device and looked very nice in her purple KAFO and Milwaukee brace. Her light summer dress looked great on her, and she showed off her braces with pride. Her SATS and hinged LLWC were very worn and dirty, but also highly decorated with signatures, drawings, and other artwork. Simply put, Blake looked stunning, and her upbeat, cheerful attitude made her even more beautiful. The shy and timid Blake we met at the resort is disappearing.
 
 
After they got settled, Blake asked if I wanted to go with them to their appointments and grab lunch. I never miss the opportunity to accompany someone to the orthodontist or orthotics shop, so I said yes. Chris drove us to town, and I noticed that Blake always looked straight ahead; she never turned her head at all, which is something we can do in our Milwaukee braces if we stretch a bit. I asked her why she wasn't looking around like I was, and she said, "Oh, I'm just so used to wearing my Kuehnegger brace that I don't even try to move my head to look around anymore."
 
 
Our first stop was at Robbins Orthodontics, where, as always, Sally was happy to see us. You never know what will be going on in her mouth when it comes to her orthodontics. Today she just had her bands, a large tongue crib, and yellow cervical headgear. What did stand out was Sally's choice of footwear; she was wearing a pair of freshly applied yellow short leg casts with European-style cast shoes, the ones that are impossible to get here in the US. Sally explained that when she stopped in to have lunch with Billy and Collie the other day, a package was delivered from a German colleague of Billy's; he had sent these cast shoes to evaluate. Sally said she immediately offered to get a couple of casts so she could try out the new cast shoes. A little while later, she was walking out of the shop wearing casts and the new cast shoes for the next six weeks. 
 
 
As Sally took us to the two-chair exam room, she and Blake talked about their love of casts and how comforting they feel. Blake said that she was feeling anxious about her new appliance, so she got a couple of casts to see her through the first few weeks of wearing her WEDD, and that now she was doing quite well and was tired of her dirty and worn casts. A couple of quick X-rays were taken, and Chris and Blake took their places in the twin dental chairs. Sally removed their lower archwires, cleaned their teeth and the large appliances fixed to their upper arches. It was awkward for Sally to work around the metal bar that ran in front of their upper teeth, but soon the job was completed and Dr. Joe entered the room.
 
 
Joe asked how they were coping with their rather intense treatment and the intrusive device pinned to their skulls. Blake said she was doing quite well, with no physical or emotional discomfort anymore, but there was constant pressure on her teeth. She said it does hurt a bit when the adjustments are turned every other night, but they do that in the evening after having a cocktail, and they feel fine in the morning. 
 
 
Chris added that he was also doing great with little discomfort, but he has taken some teasing at work from the other guys. Joe laughed when Chris told him that he had acquired the nickname 'Robo-Jaw'. With both Chris and Blake doing well with their appliances, Joe took some measurements inside their mouths, then referred to the computer. With a smile, Joe said, "Good news! You are both making excellent progress—in fact, better progress than I expected. If things continue to progress at this rate, this part of your treatment will soon be over. Once completed, we will move onto the next stage, which will take a long time, but there will be no more intrusive appliances to wear during the day. However, there is one thing we need to do today that will probably not be comfortable: I must check the pins securing your WEDDs."
 
 
Sally had already looked over their pin sites, and they looked great, but the torque of the pins must now be checked. Chris went first, and Joe removed the locking caps from his pins, then tightened them all with the torque driver. Chris only winced when the driver clicked, bringing a very worried look to Blake's face. Soon, the six pins had been torqued and the locking caps placed on the ends. Looking at Chris, Blake nervously asked, "How... How bad did it hurt, Chris?" Chris smiled and replied, "It wasn't bad, babe; you'll do fine. There is a bit more pressure on my head now, but nothing like when we got the appliances placed initially."
 
 
Joe got to work on Blake and repeated the process. She caressed her SATS with her free hand as Joe worked, wincing each time the wrench clicked. When the job was done, she said, "That wasn't bad, but I'm glad I still have my casts on. I just focused on how good they feel to wear, and that got me through it." Joe said he would like to see the couple again in eight weeks instead of six, and by that time, they should be able to have their WEDDs removed. Joe then instructed Sally on which archwires to install on their lower arches, and he was on his way.
 
 
Sally got Chris and Blake's new archwires placed. Blake chose hot pink ligatures, and Chris got dark green ones again. They both knew that their bottom teeth would start to hurt in a few hours from their new archwires, so despite the discomfort from their pins being tightened, they wanted to go have a good lunch. We asked Sally if she would like to join us, and our offer was accepted. Chris drove us downtown to Harry's Grill for an excellent lunch. Of course all eyes were on us, with me on crutches and in all my braces and double facebows, Sally in her casts and headgear wearing scrubs, and Chris with his mouthful of metal and distraction device. However, it was Blake who got the most looks with not only her orthodontic work, Milwaukee brace, and KAFO on her right leg, but also her purple SATS and hinged purple LLWC. She seemed to really be enjoying the attention as we walked to our table.
 
 
It was humorous to watch Chris and Blake eat, navigating their forks into their mouths and around their appliances. Despite all the metal in their mouths and on their faces, they had no trouble eating their steaks. However, they did spend quite a bit of time in the restroom cleaning their appliances after they ate, as did Sally and I. 
 
 
After lunch, we dropped Sally off at work, then went to see Billy so Blake could get her spinal braces adjusted. Blake is like the rest of us and has numerous identical braces; the only difference is the finish of the metal and the color of the leather. Blake carried one of her braces inside, and Chris carried several more. Once inside, Blake and I chatted with Collie while Chris went and got the rest of Blake's braces, including her left KAFO and shoe since she is getting her LLWC removed.
 
 
After a chat with Collie, it was time for Blake to get her casts removed. Billy made quick work of removing Blake's casts, and her arm and leg were thin and covered in long hair and dead skin. There was quite a strong aroma, too, which Joel would have loved. Chris helped Blake get cleaned up and shaved her leg for her. 
 
 
After Blake's leg was washed and shaved, Billy had to go take a phone call and said it would be a few minutes. Chris took this opportunity to remove the KAFO on Blake's right leg, and he massaged both her legs, taking time at her knees and ankles, which have been causing her some pain at times despite her braces. Blake then got a small bottle of lotion from her bag and applied some to Chris's hands, and he massaged it into her legs and feet. Soon, Chris was placing Blake back into her KAFOs, which today had wedge sandals attached to them. It was a cute scene watching Chris care for Blake; they love each other very much. I get the feeling that there will soon be an engagement ring on Blake's finger.
 
 
While Chris was caring for his girlfriend, I noticed several prosthetic legs lying on a table next to a large box and packing materials. They were above the knee leg prosthetics; one set was the old-fashioned all-mechanical type, and the others looked like Otto Bock C-Leg 4 with covers that made them look like real legs. The feet were highly detailed, too, and looked like real feet with wrinkles and lines on the surface. There was also a small retainer case, and I was very curious as to what was in it and who these things were for.
 
 
When Billy returned, he got to work making the usual minor adjustments to all of Blake's spinal braces. As he was adjusting the brace that Blake was wearing, he commented, "Blake, you are making excellent progress with your spine. I think we have your curves corrected as much as possible. On your next visit, give yourself time to visit Dr. Moore and get X-rays taken for her and Ben to look at. I'm pretty sure that you won't need any more adjustments to your braces; you will just wear them to maintain the correction we have achieved. Oh, I spoke to Joe about your orthodontic situation earlier, and we need to discuss a few things."
 
 
Blake and Chris were so happy to hear that Blake's spine is making excellent progress. However, they were both a bit nervous about what Billy wanted to discuss in regards to their orthodontics. Billy and Joe have a history of creative solutions, integrating orthodontic and orthopedic bracing. Looking at Blake, Billy said, "So Blake, you are wearing one of your Kuehnegger braces for at least fourteen hours a day?"
 
 
"I wear it full-time most days, Billy. More than Ben said I need to." Blake replies.
 
 
"Very good; I know you find it comforting to wear. So for your orthodontics, you will go back to wearing your orthodontic attachment when you wear that brace after your distraction device is removed. Joe will give you all the details at that time. Will that work for you?" Billy asks with a smile.
 
 
"Yes, that will work just fine; I like how it feels to have my orthodontic braces connected to my spinal brace. I enjoy the support my big braces give me, and I always wear one around the house and to sleep in, plus all weekend, too. Chris enjoys wearing the big brace you made him, and he always sleeps in it." Blake seems happy to use the orthodontic attachment again.
 
 
"So you wear your Kuehnegger brace every night, too, Chris?" Billy looks at Chris.
 
 
"Yes... Yes, I do. I have slept in it every night since I got it. I do it for Blake." Chris shyly replies while blushing.
 
 
"Well, since you are wearing your brace anyway, we can incorporate it into your orthodontic treatment. I'll have everything ready when you get your distraction device removed. Bring all your Kuehnegger braces at that time." Billy says with a smile.
 
 
While Billy is working with Chris and Blake, I can't keep my eyes off the prosthetic legs sitting on the table along with the retainer case. Finally, I couldn't help but ask Billy about these devices, and he replied, "Normally, I could only say they are for clients, but since you know the clients and they spoke to you about them, I'll tell you. They are for Sarah and Flora. Sarah wanted a pair of spare legs to use that didn't require power. Then Flora asked me to make realistic-looking electronic legs for Sarah, with special attention paid to the feet. With molds of Shelly's feet and legs, I was able to make these very realistic prosthetics. You can open the retainer case and take a look. Flora sent molds of her teeth, and Joe made her a set of retainers with brackets on them. She plans to surprise Sarah with a metallic smile."
 
 
I looked in the case and could just imagine Sarah's surprise and animated reaction to seeing Flora wearing braces. I could also imagine Flora teasing Julie and José with her braces during one of their video chats. I miss those girls so much!
 
 
We said our goodbyes to Collie and Billy, with Billy helping to carry all of Blake's braces out to the car. They took me home, then went to visit with Blake's folks.
 
 
Later that evening, Blake and Chris arrived at our place. They had a wonderful visit with Blake's folks and went horseback riding. The couple went to bathe and change for the night, then joined Joel and me to watch a movie. Both of them were wearing their Kuehnegger braces, and Blake had on KAFOs with clog sandals attached to wear around the house. They looked so cute sitting on the couch, backs rigid and legs braced, wearing their orthodontic distraction devices, and holding hands.
 
 
The next morning, we were joined by all our friends for breakfast, as usual. We enjoyed our meal and then saw Chris and Blake off on their trip back home. Everyone leaves to go about their day except for Judy, who wants to talk to me.
 

"What's up, Judy?" I inquire.
 

"I talked to Myra Johnson last night. She would like to see us today." Judy says with excitement.
 

"Oh, for what? I don't think the devices are ready yet." I look puzzled.
 

"I don't think they are ready yet either, but Myra wants to interview us for her research. It's just a formality; we get to meet her husband and sister and see her lab, too." Judy explains.
 

"Sounds good; this will be an exciting day!" I said with a smile, and with that, Judy and I were off for today's adventure.